Patient organisations (813)

NEC UK was established in 2012 as an informal social media group by Susan Spencer, following the tragic loss of her son Tobias to Necrotising Enterocolitis (NEC) at just six days old. Recognizing the need for a…

Nerve Tumours UK, established in 1981, is a registered charity headquartered in London, UK. It operates as a charitable organization dedicated to supporting individuals affected by neurofibromatosis (NF) and related…

Established in 2010, NET & MEN Kanker is a Belgian non-profit organization headquartered in Vosselaar. It was founded to address the needs of patients with neuro-endocrine tumors (NET) and multiple endocrine neoplasia…

The NET Patient Network was established in 2013, with its headquarters in Ireland. It operates as a Company Limited by Guarantee (CLG) and is a registered charity. The organization was founded to address the needs of…

Netpa was established to support individuals affected by neuroendocrine tumors (NET) and their families. The organization is headquartered in Denmark and operates as a patient association. It was founded by patients who…

Established in 2005, Netzwerk Neuroendokrine Tumoren (NeT) e.V. is a non-profit organization headquartered in Nürnberg, Germany. It originated from a group of patients, relatives, and doctors who began meeting in…

Neuroliitto, established in 1971 and headquartered in Masku, Finland, is a registered association dedicated to supporting individuals with multiple sclerosis (MS) and rare neurological diseases, as well as their…

niemALS aufgeben e.V. was established in March 2018 in Schwabmünchen, Germany. The organization was founded by Nina Königs and her friends following her father's diagnosis with Amyotrophic Lateral Sclerosis (ALS). As a…

Njurförbundet, established in 1969, is a Swedish patient organization dedicated to advocating for individuals with kidney diseases. The organization was founded five years after the first kidney transplantation in…

The Nordic Society of Paediatric Haematology and Oncology (NOPHO) was formally established in 1984 in Reykjavik, following a merger of the Nordic Hematology Society and the Nordic Society for Pediatric Oncology. This…

Norges Astma- og Allergiforbund (NAAF) was established on January 24, 1960, by Alfred Simonsen. The organization is headquartered in Oslo, Norway, and operates as a membership-based interest organization. NAAF exists to…

Norges Blindeforbund, established in 1900, originally began as "De Blindes Selvhjælpsforening" (The Self-Help Association of the Blind). In 1909, it adopted its current name, "Norges Blindeforbund" (The Norwegian…

The Norsk Forening for Angelman Syndrom (NFAS) was established in 1997 and is headquartered in Norway. As a legally recognized organization, it was founded to address the needs of individuals affected by Angelman…

The Norsk Forening for Rett Syndrom was established in 1987, with its headquarters located in Hamar, Norway. It operates as a legally recognized association, formed by parents of girls diagnosed with Rett Syndrome. The…

The Norwegian Cancer Society, established in 1938, is a prominent organization headquartered in Oslo, Norway. It operates as a non-profit entity dedicated to addressing the challenges posed by cancer. Over the years…