Neuroendocrine Cancer Ireland

The NET Patient Network was established in 2013, with its headquarters in Ireland. It operates as a Company Limited by Guarantee (CLG) and is a registered charity. The organization was founded to address the needs of patients diagnosed with neuroendocrine tumors (NETs) and to provide a structured support system for them and their families.

The NET Patient Network exists to support individuals diagnosed with neuroendocrine tumors in Ireland. Its primary aim is to advocate for best medical practices and service levels, while fostering a supportive community atmosphere. The organization seeks to connect patients and their families, utilizing past patient experiences to enhance understanding and care.

The organization specifically supports patients diagnosed with neuroendocrine tumors, a group of relatively uncommon cancers often referred to as 'quiet cancers' due to their slow-growing nature and vague symptoms. The support extends to the families of these patients, providing them with resources and community connections.

The NET Patient Network engages in several key activities, including:

• Advocacy for improved medical practices and service levels for NET patients.
• Educational initiatives to raise awareness and understanding of NETs.
• Organizing annual patient day events to foster community and share information.
• Coordinating local patient meetings to provide direct support and information exchange.
• Interacting with both the Irish medical establishment and international NET groups to ensure comprehensive care and support.

The organization provides a range of support services to patients and their families, including:

• Information hotlines and consultations to address patient queries and concerns.
• Educational materials and workshops to enhance understanding of NETs and their management.
• Facilitating access to expert medical advice and treatment options through a network of specialists.
• Support groups and community events to connect patients and families with shared experiences.

Since its inception, the NET Patient Network has successfully established itself as a key resource for NET patients in Ireland. It has played a significant role in advocating for the recognition and treatment of NETs within the national healthcare system. The organization has also been instrumental in fostering a collaborative environment among patients, healthcare providers, and researchers, contributing to improved patient outcomes and quality of life.