Netzwerk Neuroendokrine Tumoren (NeT) e.V.

Established in 2005, Netzwerk Neuroendokrine Tumoren (NeT) e.V. is a non-profit organization headquartered in Nürnberg, Germany. It originated from a group of patients, relatives, and doctors who began meeting in Erlangen in 1995 to discuss neuroendocrine tumors. The organization became an independent entity to better address the specific needs of those affected by neuroendocrine tumors.

The organization exists to support individuals diagnosed with neuroendocrine tumors and their families. Its primary aim is to improve the medical care of patients with neuroendocrine neoplasms, facilitate self-help, and promote awareness and research in this field.

Netzwerk NeT e.V. supports patients diagnosed with neuroendocrine tumors, including neuroendocrine neoplasms, neuroendocrine carcinomas, and related conditions such as MEN1 and neuroendocrine CUP.

The organization engages in several key activities, including:

• Advocacy for improved medical care and research in neuroendocrine tumors.
• Educational initiatives to raise awareness among healthcare professionals and the public.
• Direct support programs for patients and their families.

Netzwerk NeT e.V. provides various forms of assistance to patients and their families, such as:

• Information hotlines and consultations for guidance and support.
• Educational materials, workshops, and seminars to enhance understanding of the condition.
• Facilitation of patient and family networking through regional groups and events.

Since its inception, Netzwerk NeT e.V. has grown to become one of the largest patient organizations for neuroendocrine tumors in Europe, with a membership of approximately 1,500 individuals. The organization has been instrumental in raising awareness and improving the standard of care for patients with neuroendocrine tumors.