Association AMIS (Auto-immune Myasthenia Information Service)

The Association des Myasthéniques Isolés et Solidaires (AMIS) was established in 2007, following the creation of the website myasthenie.com in 2004 by Mr. Roland Bonnier. The association was formed under the French law of July 1, 1901, concerning associations. It is headquartered in La Chapelle en Serval, France, and is recognized as a public interest organization since February 27, 2014, allowing it to issue tax receipts for donations.

The AMIS exists to support individuals affected by myasthenia gravis and their families. The organization aims to provide comprehensive information about the disease, its treatments, and its impact on daily life, while fostering a supportive community for those affected.

The association specifically supports individuals diagnosed with myasthenia gravis, a chronic neuromuscular disease, and their families.

The primary activities of AMIS include:

• Advocacy for patients with myasthenia gravis
• Educational initiatives to raise awareness about the disease
• Direct support programs for patients and their families

AMIS provides various forms of assistance to patients and their families, including:

• Information hotlines for guidance and support
• Consultations to help navigate the healthcare system
• Educational materials and workshops to better understand the disease
• A secure and confidential online forum for members to share experiences and seek advice

One of the notable achievements of AMIS is the launch of the NOMADE project, which aims to help patients with myasthenia gravis become more autonomous in managing their treatment outside of hospital settings. This project provides personalized support to reduce the need for hospital visits and alleviate the fatigue associated with centralized care.