Asociación Nacional de Hipertensión Pulmonar

The Asociación Nacional de Hipertensión Pulmonar (ANHP) was established in 2004 by its founder, Irene Delgado. The organization is headquartered in Madrid, Spain, and operates as a non-profit, non-religious, and apolitical entity. It was declared a public utility in November 2008, reflecting its commitment to serving the community and its legal recognition as a beneficial organization.

The ANHP exists to support individuals diagnosed with pulmonary hypertension, along with their families and caregivers. The organization aims to improve the quality of life for these individuals by providing education, support, and advocacy. It seeks to raise awareness about the disease, promote early diagnosis, and support research efforts to find a cure.

The ANHP specifically supports individuals affected by pulmonary hypertension, including those with idiopathic, hereditary, or secondary forms of the condition. The organization also extends its support to families and caregivers of patients.

The ANHP engages in a variety of activities to fulfill its mission, including:

• Advocacy for patients' rights and access to healthcare services.
• Educational initiatives to raise awareness about pulmonary hypertension among the general public and healthcare professionals.
• Direct support programs for patients and their families, including psychological and social support services.
• Organizing events and campaigns to promote awareness and understanding of pulmonary hypertension.

The ANHP provides concrete assistance to patients and their families through various means, such as:

• Information hotlines and consultations to offer guidance and support.
• Educational materials and workshops to inform patients and caregivers about the disease and its management.
• Psychological support services to help patients and families cope with the emotional impact of the disease.
• Social work services to assist with navigating healthcare systems and accessing necessary resources.

Over the years, the ANHP has achieved significant milestones, including the successful organization of awareness campaigns such as the World Pulmonary Hypertension Day. The association has also been instrumental in establishing a network of support for patients across Spain, contributing to improved patient outcomes and quality of life.