Angelmanforeningen Norge

The Norsk Forening for Angelman Syndrom (NFAS) was established in 1997 and is headquartered in Norway. As a legally recognized organization, it was founded to address the needs of individuals affected by Angelman syndrome and their families. Over the years, NFAS has grown to include 579 members, with 91 individuals diagnosed with Angelman syndrome.

NFAS exists to enhance and promote understanding of Angelman syndrome. The organization aims to create a supportive community where parents, siblings, relatives, and professionals can meet to exchange experiences and share knowledge.

The organization specifically supports individuals diagnosed with Angelman syndrome, a genetic disorder that affects the nervous system, leading to developmental disabilities and neurological issues.

NFAS engages in several key activities to support its mission:

• Advocacy for individuals with Angelman syndrome and their families.
• Educational initiatives to raise awareness and understanding of the condition.
• Organizing family gatherings and workshops to facilitate knowledge sharing and community building.

NFAS provides various forms of assistance to patients and their families, including:

• Information hotlines and consultations to offer guidance and support.
• Educational materials and workshops to enhance understanding of Angelman syndrome.
• Support programs that include family gatherings and sibling workshops to foster a sense of community and shared experience.

Since its inception, NFAS has successfully established a robust network of support for families affected by Angelman syndrome. The organization has facilitated numerous family and sibling gatherings, providing a platform for shared learning and community support.