ANDO Portugal – Associação Nacional de Displasias Ósseas

ANDO Portugal, officially known as the Associação Nacional de Displasias Ósseas, was established on May 26, 2015. The organization was founded by a group of individuals connected to skeletal dysplasias, aiming to create a support network and drive change. The headquarters is located in Évora, Portugal. Since 2017, ANDO has been recognized by the Instituto Nacional de Reabilitação (INR) as a Non-Governmental Organization for People with Disabilities (ONGPD).

ANDO Portugal exists to support individuals with skeletal dysplasias and their families. The organization aims to provide useful and up-to-date information, guide socio-economic, educational, legal, and public health inquiries, and collaborate with medical, social, and scientific research. It strives to raise awareness and promote the rights of individuals with these conditions.

ANDO Portugal supports individuals affected by skeletal dysplasias, a group of 771 rare genetic conditions that impact bone, cartilage, and dentin morphology, leading to various pathologies across different organ systems.

The organization engages in several primary activities, including:

• Advocacy for the rights and needs of individuals with skeletal dysplasias.
• Educational initiatives to increase awareness and understanding of these conditions.
• Direct support programs for patients and their families.
• Collaboration with research projects to advance scientific knowledge and treatment options.

ANDO Portugal provides concrete assistance to patients and their families through:

• Information hotlines and consultations to address specific concerns.
• Educational materials and workshops to enhance understanding and management of the conditions.
• Support in navigating healthcare systems and accessing necessary treatments.

Since its inception, ANDO Portugal has successfully organized national and international meetings and projects, contributing significantly to the community of individuals with skeletal dysplasias. The organization has also established itself as a key player in advocating for better healthcare policies and support systems for those affected by these conditions.