AMMF – The Cholangiocarcinoma Charity

Founded in 2002, AMMF is the world’s first charity dedicated solely to cholangiocarcinoma, also known as bile duct cancer. Headquartered in the UK, AMMF operates as a Charitable Incorporated Organisation, working nationally and across Europe, while actively collaborating on a global scale. The charity was established to address the increasing incidence of cholangiocarcinoma and the lack of awareness and research surrounding this challenging cancer.

AMMF exists to support individuals affected by cholangiocarcinoma, aiming to raise awareness, provide information, and encourage research into the causes, early diagnosis, and effective treatments for this disease. The organization advocates for patients' viewpoints in national and international forums, striving to improve outcomes and quality of life for those diagnosed with cholangiocarcinoma.

AMMF specifically supports individuals diagnosed with cholangiocarcinoma, a rare and aggressive form of cancer that affects the bile ducts. The organization also extends its support to the families and caregivers of these patients, providing resources and information to help them navigate the challenges associated with the disease.

AMMF engages in a variety of activities to fulfill its mission, including:

• Advocacy: Representing the interests of cholangiocarcinoma patients in healthcare policy discussions and research initiatives.
• Education: Providing comprehensive information on cholangiocarcinoma, including symptoms, diagnosis, and treatment options, through its website and publications.
• Research Support: Funding and supporting specialized research teams to explore the causes, early diagnosis, and treatment of cholangiocarcinoma.
• Awareness Campaigns: Organizing events such as Cholangiocarcinoma Awareness Month and World Cholangiocarcinoma Day to increase public and professional awareness of the disease.

AMMF offers a range of support services to patients and their families, including:

• Information Resources: Providing access to educational materials, guidelines, and research findings related to cholangiocarcinoma.
• Patient and Carer Support: Facilitating discussion groups and webinars to connect patients and carers with experts and peers for shared experiences and advice.
• Consultations: Offering guidance on seeking second opinions and accessing specialized treatment centers.
• Workshops and Conferences: Hosting events to disseminate the latest research and treatment advancements in cholangiocarcinoma.

AMMF has made significant strides in raising awareness and supporting research into cholangiocarcinoma. The charity has successfully transitioned to a Charitable Incorporated Organisation, expanded its reach across Europe, and collaborated with international partners to enhance research efforts. Notably, AMMF has been instrumental in the development of comprehensive guidelines for the diagnosis and management of cholangiocarcinoma, endorsed by the British Society of Gastroenterology.