ALS Schweiz

ALS Schweiz was established in 2007, originally under the name ALS-Vereinigung.ch. The organization was founded by Esther Jenny and Thomas Unteregger, who were personally affected by Amyotrophic Lateral Sclerosis (ALS). The headquarters is located in Olten, Switzerland, and it operates as a non-profit association under Article 60ff. of the Swiss Civil Code (ZGB).

ALS Schweiz exists to support individuals diagnosed with Amyotrophic Lateral Sclerosis and their families. The organization aims to provide comprehensive support during the challenging period following diagnosis, offering guidance on care, legal matters, and emotional support. It also seeks to raise awareness about ALS and advocate for the needs of those affected.

The organization specifically supports individuals diagnosed with Amyotrophic Lateral Sclerosis (ALS) and their families, addressing the unique challenges posed by this progressive neurodegenerative disease.

ALS Schweiz engages in several key activities, including:

• Advocacy for ALS patients and their families at a national level
• Educational initiatives to raise awareness about ALS
• Direct support programs for patients and their families
• Collaboration with international ALS organizations

ALS Schweiz provides a range of support services to patients and their families, including:

• Information hotlines and consultations for legal and administrative guidance
• Educational materials and workshops on ALS management
• Psychological support and counseling services
• Access to assistive devices and home adaptation advice
• Organized exchange meetings and annual retreats for patients and families

Since its inception, ALS Schweiz has successfully established a network of support for ALS patients and their families across Switzerland. The organization has also played a pivotal role in hosting international ALS conferences and has been recognized for its contributions to ALS advocacy and patient support.