groups

ALS-mobil e.V.

Country
Germany

History

Established in 2008, ALS-mobil e.V. was founded by individuals affected by Amyotrophic Lateral Sclerosis (ALS) in Germany. The organization is headquartered in Berlin and operates as a registered non-profit association. Over the years, it has grown into a robust network, driven by the dedication of its members and supporters.

Mission and Goals

ALS-mobil e.V. exists to support individuals affected by ALS, their families, caregivers, and therapy companions. The organization aims to provide comprehensive services, including advice, mutual assistance, and shared activities, to enhance the quality of life for those living with ALS.

Target Group

The organization specifically supports individuals diagnosed with Amyotrophic Lateral Sclerosis (ALS), their families, and caregivers.

Main Activities

ALS-mobil e.V. engages in several key activities, including:

  • Advocacy for ALS patients and their rights
  • Educational initiatives to raise awareness about ALS
  • Direct support programs for patients and their families
  • Organizing informational events and congresses

Types of Support Offered

The organization provides various forms of assistance to patients and their families, such as:

  • Information hotlines for immediate support and guidance
  • Consultations to help navigate social insurance claims and mobility issues
  • Educational materials and workshops to inform and empower patients and caregivers
  • Support in redesigning personal life concepts to adapt to living with ALS

Achievements

ALS-mobil e.V. has successfully organized multiple congresses and informational events, such as the ALS Betroffenen-Kongress, which serves as a platform for sharing the latest scientific and therapeutic advancements in ALS. The organization has also been recognized for its transparency and effective use of resources, as demonstrated by its participation in the startsocial initiative, which supports social projects with business expertise.

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