ALS Europe

The European Organization for Professionals and People with ALS (EUpALS) was established in 2025. It is headquartered in Leuven, Belgium, and operates as a non-profit organization under Belgian law. EUpALS was founded to address the needs of ALS patients across Europe by uniting various national ALS associations to enhance collaboration and advocacy efforts.

EUpALS exists to support individuals affected by Amyotrophic Lateral Sclerosis (ALS) across Europe. The organization aims to create equal rights for all European ALS patients, improve access to research and information, and foster collaboration among European ALS associations. EUpALS is committed to advocating for the rights of ALS patients, raising awareness about the disease, and standardizing research protocols across Europe.

EUpALS specifically supports individuals diagnosed with Amyotrophic Lateral Sclerosis (ALS) and their families. The organization focuses on addressing the needs of ALS patients and enhancing their quality of life through various support mechanisms.

EUpALS engages in several key activities, including:

• Advocacy: Representing the interests of ALS patients at a European level to influence policy and research funding.
• Education: Providing educational resources and information to patients, families, and healthcare professionals.
• Direct Support Programs: Offering support services to improve the quality of life for ALS patients and their families.

EUpALS provides a range of support services to ALS patients and their families, including:

• Information Hotlines: Offering guidance and information on ALS-related issues.
• Consultations: Providing expert advice and support to patients and caregivers.
• Educational Materials: Distributing resources to enhance understanding of ALS and its management.
• Workshops: Organizing workshops to educate and empower patients and their families.

Since its inception, EUpALS has successfully united numerous national ALS associations across Europe, fostering a collaborative environment for research and advocacy. The organization has played a pivotal role in raising awareness about ALS and influencing policy changes to benefit patients.