ALER

The Asociación Leonesa de Enfermedades Raras y Sin Diagnóstico, known as ALER, was established on March 12, 2019. It is a non-profit organization headquartered in León, Spain. The association was declared of Public Utility by the Ministry of Interior on February 25, 2025.

ALER exists to support individuals affected by rare diseases and those without a diagnosis, along with their families. The organization aims to improve their quality of life through comprehensive support, advocacy, and the promotion of social inclusion.

ALER specifically supports individuals and families dealing with rare diseases and conditions that remain undiagnosed.

The organization engages in several key activities, including:

• Advocacy for the rights and needs of individuals with rare diseases.
• Educational initiatives to raise awareness and understanding of rare diseases.
• Direct support programs for affected individuals and their families.

ALER provides a range of support services, such as:

• Information hotlines and consultations to guide patients and families through available resources.
• Psychological support to help manage emotional challenges associated with rare diseases.
• Educational materials and workshops to enhance understanding and coping strategies.
• Leisure activities aimed at promoting integration and well-being.

ALER has been recognized as a Public Utility entity, which underscores its commitment to serving the community and enhancing the lives of those affected by rare diseases.