ALBI-ESPAÑA

ALBI-ESPAÑA, a non-profit organization, was established on July 3, 2007. It was founded by individuals affected by inflammatory biliary diseases, including Primary Biliary Cholangitis, Primary Sclerosing Cholangitis, and Autoimmune Hepatitis. The organization is headquartered in Barcelona, Spain, and operates under a legal framework that supports its mission to assist those affected by these conditions.

ALBI-ESPAÑA exists to support individuals affected by inflammatory biliary diseases. The organization aims to inform, develop, and promote actions that assist patients with these conditions. It seeks to facilitate communication and meetings between patients and medical professionals, keep members informed about research advancements, and collaborate with similar organizations internationally. Additionally, ALBI-ESPAÑA works towards securing socio-sanitary and labor improvements and collaborates with health professionals and compatible associations on social awareness initiatives related to organ donation, biomedical research, and organ transplants.

The organization specifically supports individuals diagnosed with Primary Biliary Cholangitis, Primary Sclerosing Cholangitis, and Autoimmune Hepatitis. It also extends its support to those with overlapping syndromes involving these conditions.

ALBI-ESPAÑA engages in several primary activities, including:

• Advocacy for patients with inflammatory biliary diseases
• Educational initiatives to raise awareness and understanding of these conditions
• Direct support programs for patients and their families
• Collaboration with medical professionals and research institutions

The organization provides concrete assistance to patients and their families through various means, such as:

• Information hotlines for patient inquiries and support
• Consultations to facilitate communication between patients and healthcare providers
• Educational materials and workshops to enhance understanding of the diseases
• Support in navigating healthcare systems and accessing necessary treatments

ALBI-ESPAÑA has initiated collaborations with prominent medical institutions, such as the Hospital Clínic de Barcelona, to conduct studies on fatigue and Primary Biliary Cholangitis. The organization has also been involved in clinical trials evaluating new treatments for cholestatic diseases, contributing to advancements in patient care and treatment options.