ADEC

The Asociación de Esclerodermia Castellón (ADEC) was established on April 27, 1999, in Castellón, Spain. It is a non-profit organization that was declared of public utility on July 17, 2008. The association was founded to address the lack of necessary legislation for adequate social protection and specialized care for individuals affected by scleroderma.

ADEC exists to improve the quality of life for individuals with scleroderma and their families. The organization aims to promote social understanding and raise awareness among public authorities about the disease and its challenges. It seeks to provide both physical and psychological support to those affected, helping them manage stress and improve their quality of life.

ADEC supports individuals affected by scleroderma, a rare connective tissue disease, and their families. The organization focuses on those living with both localized and systemic forms of the condition.

The primary activities of ADEC include:

• Advocacy for recognition of scleroderma as a chronic disease
• Educational initiatives to increase awareness and understanding of the disease
• Organizing meetings, conferences, and workshops
• Collaborating with healthcare professionals and other related associations

ADEC provides various forms of support to patients and their families, including:

• Information hotlines and consultations to offer guidance and support
• Distribution of educational materials and resources
• Workshops and seminars to educate and empower patients and their families
• Psychological support services to help manage emotional and mental health challenges

Since its inception, ADEC has been instrumental in promoting social awareness and advocating for the needs of individuals with scleroderma. The organization has successfully collaborated with national and international entities to further its mission and has been recognized for its contributions to the community.