ADAAT Alpha1-France

Founded in July 2007, ADAAT Alpha1-France was established by the parents of two children affected by Alpha-1 Antitrypsin Deficiency (AATD). The organization was created to provide information and support to families who were inadequately informed about the condition and to combat isolation. It also aims to raise awareness among medical professionals and encourage research into finding a curative treatment. ADAAT Alpha1-France is recognized as a public interest organization and is headquartered in Albias, France.

ADAAT Alpha1-France exists to support individuals and families affected by Alpha-1 Antitrypsin Deficiency. The organization aims to break the isolation of affected families, provide moral, administrative, and material support, and improve the understanding and management of the condition among patients, healthcare providers, and the general public.

The organization specifically supports individuals and families affected by Alpha-1 Antitrypsin Deficiency, a genetic condition that can lead to liver and lung complications.

ADAAT Alpha1-France engages in several key activities, including:

• Advocacy for improved knowledge and treatment of AATD
• Educational initiatives to inform patients and healthcare providers
• Direct support programs for affected families
• Organization of informational weekends and workshops
• Participation in research and clinical trials

The organization provides various forms of assistance to patients and their families, such as:

• Information hotlines and telephone support
• Assistance with administrative procedures
• Exceptional social fund support for medical expenses
• Discussion forums and private social media groups
• Educational materials and workshops on living with AATD

Since its inception, ADAAT Alpha1-France has made significant strides in supporting research and improving patient care. The organization has been instrumental in funding research programs, such as those led by Dr. Marion Bouchecareilh, and has supported the development of educational resources for children and families affected by AATD.